Post by chobi123 on Nov 20, 2021 0:20:35 GMT -5
Millions around the world suffer from rare diseases that attract little attention in the public arena. Bahrain Phone Numbers List On February 28th, those who endure these often-neglected illnesses will take centre stage in a global observation of Worldwide Rare Disease Day. The European Rare Disease Organization, or EURORDIS, first Bahrain Phone Numbers List established the special day in 2008 as a way to draw community attention to these diseases. In the following year, the organization launched a partnership with the U.S.-based National Organization for Rare Disorders Bahrain Phone Numbers List (NORD).
goal of the collaboration was to encourage Bahrain Phone Numbers List support for effective government policies, research funding, new treatments, quality care and public information efforts on the issue of these conditions. Since then, many other countries have joined the effort to raise awareness of these illnesses. In 2012, more than 60 nations from around the world were involved in promoting Rare Disease Day Bahrain Phone Numbers List activities. The event's organizers believe their message also is reaching many more people today because of the expansion of social media sites such as Facebook and Twitter. The 2013 Rare Disease Day slogan, "Rare Disorders Without Borders," Bahrain Phone Numbers List reflects this global endeavour.
Any illness that affects a small portion Bahrain Phone Numbers List of the population is considered a rare disease, also known as an orphan disease. In the United States, any disease that afflicts 200,000 people or less is given this designation. About 30 million Americans are affected by nearly 7,000 of these rare diseases. In Europe, more than 30 million people are believed to be suffering from these diseases. Bahrain Phone Numbers List When looking at the MENA (Middle East and North Africa) region we see that the Arab countries contribute approximately USD 30 billion Bahrain Phone Numbers List per year to their populations' suffering from hereditary genetic diseases,
goal of the collaboration was to encourage Bahrain Phone Numbers List support for effective government policies, research funding, new treatments, quality care and public information efforts on the issue of these conditions. Since then, many other countries have joined the effort to raise awareness of these illnesses. In 2012, more than 60 nations from around the world were involved in promoting Rare Disease Day Bahrain Phone Numbers List activities. The event's organizers believe their message also is reaching many more people today because of the expansion of social media sites such as Facebook and Twitter. The 2013 Rare Disease Day slogan, "Rare Disorders Without Borders," Bahrain Phone Numbers List reflects this global endeavour.
Any illness that affects a small portion Bahrain Phone Numbers List of the population is considered a rare disease, also known as an orphan disease. In the United States, any disease that afflicts 200,000 people or less is given this designation. About 30 million Americans are affected by nearly 7,000 of these rare diseases. In Europe, more than 30 million people are believed to be suffering from these diseases. Bahrain Phone Numbers List When looking at the MENA (Middle East and North Africa) region we see that the Arab countries contribute approximately USD 30 billion Bahrain Phone Numbers List per year to their populations' suffering from hereditary genetic diseases,